Anyone with experience: loved one with dementia

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TLHKAJ

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Does anyone here have personal experience with elderly who is living with dementia? Does dementia cause inhibitions to degrade so that a person who was fairly pleasant most of the time suddenly becomes suspicious, combative, fearful, manipulative, secretive, dishonest, etc?

I'm asking this bc it's something I'm seeing in a friend's mother and they are struggling with how to handle the care of their mother.
 
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marks

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Does anyone here have personal experience with elderly who is living with dementia? Does dementia cause inhibitions to degrade so that a person who was fairly pleasant most of the time suddenly becomes suspicious, combative, fearful, manipulative, secretive, dishonest, etc?

I'm asking this bc it's something I'm seeing in a friend's mother and they are struggling with how to handle the care of their mother.
Both my father in law and mother in law had dementia. I was more involved with my mother in law. Yes, all these things and more.

We learned there were certain topics to not talk about. We learned to not try to address her every concern, because she would not receive it. It was better to distract her, in my wife's words, "jolly her up", to make her forget about the troubles. It was a very difficult time!

Much love!
 

Windmill Charge

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Does dementia cause inhibitions to degrade so that a person who was fairly pleasant most of the time suddenly becomes suspicious, combative, fearful, manipulative, secretive, dishonest, etc

Not just dementia, some people as they age seem to ,lose inhibitions, not necessarily being nasty just crude.
May I suggest that you maintain contact with your friend and seek to provide an option of 3scaping from the troubles of caring for parents.
Either by your taking responsibility for a day, so he/she can go out, or by taking them out while someone else does the caring.
 
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TLHKAJ

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Not just dementia, some people as they age seem to ,lose inhibitions, not necessarily being nasty just crude.
May I suggest that you maintain contact with your friend and seek to provide an option of 3scaping from the troubles of caring for parents.
Either by your taking responsibility for a day, so he/she can go out, or by taking them out while someone else does the caring.
I do actually, several days a week. I'll do things for her care-wise, keep her company, watch animal videos with her, cook meals, run errands, help clean messes, wash laundry, etc. (She has very frequent accidents.)
 

Lambano

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Does anyone here have personal experience with elderly who is living with dementia? Does dementia cause inhibitions to degrade so that a person who was fairly pleasant most of the time suddenly becomes suspicious, combative, fearful, manipulative, secretive, dishonest, etc?
I got this second hand from my grandmother, but after my grandfather developed dementia (after the stroke), he became mean and even violent, to her and to the nurses and orderlies at the rest home. That was an awful situation.
 

TLHKAJ

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Both my father in law and mother in law had dementia. I was more involved with my mother in law. Yes, all these things and more.

We learned there were certain topics to not talk about. We learned to not try to address her every concern, because she would not receive it. It was better to distract her, in my wife's words, "jolly her up", to make her forget about the troubles. It was a very difficult time!

Much love!
Thank you for sharing.

I'll give an example of some of her odd and manipulative behaviors. My friend has cats and likes to brush them with a specific brush. It came up missing so they asked mom, "Mom, have you seen the cat brush?" She asks, "What brush? I don't know what brush you're talking about." So my friend lets it go and walks to the bathroom. Mom immediately gets up from her recliner and walks (very ably) to her bedroom and in less than a minute, comes out with the cat brush and puts it on the table next to my friend's chair. Mom sits down in her recliner and didn't realize I saw the whole thing. (lol) If she knows we are in the room, or we are in public, she walks very ......VERY slowly, shuffling her feet, taking 5 minutes to walk 20 feet, holding onto people and things. But when she thinks no one sees, she walks much faster and doesn't have to shuffle much at all, or hold onto every wall, handle, table, doorframe, etc. she is very able at times. I've seen it.

And then my friend reported that mom knocks on the wall at night... they run to check on mom, and she is laying on her back in middle of her bed saying she's falling. Another night when my friend ran to check on mom in middle of the night, she was on the floor next to the bed saying she'd fallen and hit her head on the wall ...and she couldn't get back up. But here's the strange thing... there's a hole in the wall where supposedly her head hit, but she had no head pain, no lump or bump or abrasion ...and the hole was down just above the baseboard, in a place where her head wouldn't be if she'd fallen out of the bed. (It wasn't at the head-end of the bed ...more around the knee area or lower.) So we're scratching our heads not knowing why mom would knock a hole in the wall and then claim she fell out of the bed, hitting the wall with her head hard enough to make a sizeable hole... and her head is fine.

And she won't make her wants and needs known directly. We have told her that all the loads of sugars and high carb foods make her dementia worse and that we are cleaning up her diet ...high healthy proteins, healthy fats, some organic fruits, and maybe some squash, zucchini, etc. But she will study the grocery list on the fridge and then say something like.... "What was the situation when we used to have those things ...oh, yeah ....pancakes?" Or she'll say, "You know what I used to eat that I really liked? ....cashews and mixed nuts." Or she'll say... "What were those crackers that I saw on the counter over there?" (And there wasn't any crackers on the cabinet. lol) But what she's doing is trying to hint that she doesn't want healthy food ...she wants crackers, nuts, sugar, pancakes, and cereal. So rather than saying ... "Could we have some pancakes sometime?" ...she plays games. And I can make keto, high protein pancakes (like I have in the past before we decided we were reducing oxalates).

Sigh ....anyway, it's a stressful and sad way to live. When she gets more protein and less carbs, she is more alert. But she started drowning all her proteins with ketchup, mayo, and honey ......lol ...... it's just puzzling!

I've never been in this situation before. It's hard to know what she's doing on purpose and what is forgetfulness ....like when she comes out of her bedroom to go to the bathroom and looks at me and my friend and asks, "Is anyone in the bathroom?" But she sees everyone sitting in the room ...she has lost her ability to process information. That sounds like "normal" dementia to me ...and her forgetting what her daughter looks like/not recognizing her ....and forgetting who lives with her, or where she lives.... ugh .....but the other stuff sounds deliberate. It's rough on my friend.
 
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marks

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Thank you for sharing.

I'll give an example of some of her odd and manipulative behaviors. My friend has cats and likes to brush them with a specific brush. It came up missing so they asked mom, "Mom, have you seen the cat brush?" She asks, "What brush? I don't know what brush you're talking about." So my friend lets it go and walks to the bathroom. Mom immediately gets up from her recliner and walks (very ably) to her bedroom and in less than a minute, comes out with the cat brush and puts it on the table next to my friend's chair. Mom sits down in her recliner and didn't realize I saw the whole thing. (lol) If she knows we are in the room, or we are in public, she walks very ......VERY slowly, shuffling her feet, taking 5 minutes to walk 20 feet, holding onto people and things. But when she thinks no one sees, she walks much faster and doesn't have to shuffle much at all, or hold onto every wall, handle, table, doorframe, etc. she is very able at times. I've seen it. And then my friend reposted that mom knocks the wall at night they run to check on mom, and she is laying on her back in middlw of her bed saying she's falling ...ankther night when my friend ran to check on mom in middle of the night, she was on the floor next to the bed saying she'd fallen and hit her head on the wall ...and she couldn't get back up. But here's the strange thing... there's a hole in the wall where supposedly her head hit, but she had no head pain, no lump or bump or abrasion ...and the hole was down just above the baseboard, in a place where her head wouldn't be if she'd fallen out of the bed. (It wasn't at the head-end of the bed ...more around the knee area or lower.) So we're scratching our heads not knowing why mom would knock a hole in the wall and then claim she fell out of the bed, hitting the wall with her head hard enough to make a sizeable hole... and her head is fine.

And she won't make her wants and needs known directly. We have told her that all the loads of sugars and high carb foods make her dementia worse and that we are cleaning up her diet ...high healthy proteins, healthy fats, some organic fruits, and maybe some squash, zucchini, etc. But she will study the grocery list on the fridge and then say something like.... "What was the situation when we used to have those things ...oh, yeah ....pancakes?" Or she'll says, "You know what I used to eat ....cashews and mixed nuts." Or she'll say... "What were those crackers that I saw on the counter ober there?" (And there wasn't any crackers on the cabinet. lol) But what she's doing is trying to get the message that she doesn't want healthy food ...she wants crackers, nuts, sugar, pancakes, and cereal.) So rather than saying ... "Could we have some pancakes sometime?" ...she plays games. And I can make keto, high protein pancakes (like I have in the past before we decided we were reducing oxalates).

Sigh ....anyway, it's a stressful and sad way to live. When she gets more protein and less carbs, she is more alert. But she started drowning all her proteins with ketchup, mayo, and honey ......lol ...... it's just puzzling!

I've never been in this situation before. It's hard to know what she's doing on purpose and what is forgetfulness ....like when she comes out of her bedroom to go to the bathroom and looks at me and my friend and asks, "Is anyone in the bathroom?" But she sees everyone sitting in the room ...she has lost her ability to process information. That sounds like "normal" dementia to me ...and her forgetting what her daughter looks like/not recognizing her ....and forgetting who lives with her, or where she lives.... ugh .....but the other stuff sounds deliberate. It's rough on my friend.
My mother in law had Vascular Dementia, from a number of small strokes, and one larger stroke. This kind is random in where it strikes. She was more like dealing with a child for the most part, for me. For my wife, her mother reverted to the person she was when my wife was a child, unfortunately. To me she would be nicer, and would more easily let me help her.

My father in law had alzheimers. He would stack up pennies in strategic locations to prevent the mind-reading machines used by the cartels and the CIA from stealing his thoughts.

Much love!
 

TLHKAJ

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My father in law had alzheimers. He would stack up pennies in strategic locations to prevent the mind-reading machines used by the cartels and the CIA from stealing his thoughts.
Sometimes I think what comes out with the loss of inhibitions are things that were kept tightly under wraps most of their lives. In other words, someone who had certain uncommon knowledge through experience may have those things seep or leak out in strange ways when their mind is feeble and isn't working so hard to keep it under wraps.

I hope that made sense...
 

marks

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Sometimes I think what comes out with the loss of inhibitions are things that were kept tightly under wraps most of their lives. In other words, someone who had certain uncommon knowledge through experience may have those things seep or leak out in strange ways when their mind is feeble and isn't working so hard to keep it under wraps.

I hope that made sense...
Yes it does make sense, and yes, I think that can happen. Filters come off, a person regresses, executive function gives way to emotionalism, lots of things can happen! We never knew exactly what to expect.

Much love!
 

Lizbeth

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Does anyone here have personal experience with elderly who is living with dementia? Does dementia cause inhibitions to degrade so that a person who was fairly pleasant most of the time suddenly becomes suspicious, combative, fearful, manipulative, secretive, dishonest, etc?

I'm asking this bc it's something I'm seeing in a friend's mother and they are struggling with how to handle the care of their mother.
Yes those things can be symptoms of dementia. But also could be caused by other things.....if the family can afford it she really should be checked out by a doctor to rule out other medical problems.
 
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TLHKAJ

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Yes those things can be symptoms of dementia. But also could be caused by other things.....if the family can afford it she really should be checked out by a doctor to rule out other medical problems.
She's had good health all her life and doesn't even wear or need glasses at age 85. Her appetite is strong. She eats more in volume than I do (at over 30 years younger than her). Her main problem is her diet which feeds the dementia. I do notice her mental clarity is sharper and she is awake more when she hasn't had a ton of carbs for several days. It's like night and day. When she was doing mostly carnivore for a week, one day I went to visit and she was awake in middle of the day, dressed nicely, hair fixed up, shoes on, and asking to go do something. And she was awake a good while. It was a stark change. But ...she is carb addicted and there is still some junk in the house, sad to say.
 
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Windmill Charge

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I do actually, several days a week. I'll do things for her care-wise, keep her company, watch animal videos with her, cook meals, run errands, help clean messes, wash laundry, etc. (She has very frequent accidents.)
May I suggest you get her church involved, sitting with her,running errands etc.
To lighten the load on yourself as well as for the principal carer.
 
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Hepzibah

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I took care of my m-i-l who had vascular dementia and she was a church goer all of her life, in those final years she swore like a trooper, was aggressive and generally a different person.

There was a day unit nearby and they picked her up daily and brought her home afterwards. Is there nothing like that nearby?

Eventually she became impossible as she took every chance she could to escape She would manage to get hold of money and go to the nearest shop to spend it all on sweets which she demolished. When she was admitted into residential care she was as happy as anything as she could wander around the corridors.

I had her on an organic wholefood vegetarian diet so she lasted out longer, but now there have been a lot of studies done on how to reverse dementia with diet plus supplements. I think b vits are important especially vit b1.

My deepest sympathies.

 
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Gottservant

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I have heard of someone praying for dementia and the person prayed for recovering briefly.

It has a lot to do with the potential of the power of God, within them?
 
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St. SteVen

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Does anyone here have personal experience with elderly who is living with dementia?
You have probably learned a lot about this already by now. But I can share what I know.

My 93 year old Mom has dementia. She is in a "memory care" (lock up) facility now.
For her "own safety", as they say.

Before she went into a care facility (not "memory care") she was repeating herself constantly. And forgetting things in general. They moved her out of her senior living apartment when she just about burned the place down by leaving something on the stove.

The trauma of being removed from her apartment triggered the dementia. She didn't know where she was, or what was happening to her. I called her to talk. I wanted to see how she was settling into her new place. She was frantic for me to help her. Said she had been taken against her will. I called my sister to see what was going on. Dementia.

While in the care facility she spent all her time trying to escape. And when I went to visit she thought I was there to move her out. She was very relieved to see me. She was all packed up and ready to go. Say what? !!! Which meant whenever I visited, I had to escape so that she wouldn't follow me out the door.

She has settled in a little better now. But she was put in "memory care" after a successful escape attempt. They found her outside the building in the middle of the night. Yikes!

I visit her for lunch now in their cafeteria/restaurant every couple of weeks. She spends half the time reading the menu over and over again to my wife and I. And asking questions about the family repeatedly. I'm thankful that she remembers me and is always glad to see me.

]
 
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Rita

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It’s sadly not unusual and it can depend on what kind of demencia someone has, many residents became violent, obnoxious, abrupt ect and the families would find it hard to believe because it was out of character. Its not unusual for them to become suspicious because they are living in a different reality to someone without dementia, memories gets muddled up. Also they can forget that they have eaten, so they eat many times and simply don’t remember - that’s quite common.
 

Lambano

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Its not unusual for them to become suspicious because they are living in a different reality to someone without dementia, memories gets muddled up.
The last words I recall Grandpa spoke to me were, "I'm sorry; I don't remember you." That's the sad part, when the memories go.

I'd rather remember the Grandpa who taught me to play chess and who took me fishing. I didn't know that Grandpa either. :(
 
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