PS95
Well-Known Member
I'm so glad to hear that you got some good news! Wonderful!! I have been hearing that all doc appts anymore are months away. We sound like socialized medicine. I will keep praying.. that new maybe is also wrong. Many people have many strange symptoms with no real diagnosis. Is it since "Covid"? Seems so. You have lots of time to forget about this fall- so I hope you are able to!Rita,
I just got back from our second visit to Mayo's, and just decided to check out this thread again. Looks like it didn't really go anywhere since. But I still wanted to respond to 'our' last post. Now I see you asked me to 'keep you all posted', so I will.But I'll limit tags to just those who did respond to my one post.
@TLHKAJ @amigo de christo @Lambano @PS95
The last Neurologist we talked to Friday morning said Lewy Body Dementia is definitely off the list. That was the one where prognosis was "poor".....I'll agree with that. From my reading, it was 'no cure, but a good possibility of death after aspirating your own vomit...but if you survived that, it was to then die of pneumonia.' I wasn't going that route. But I didn't leave Mayo's with an "All is well." dx., either. They want me back in the Fall to be seen by a Dysautonomia Neurologist. He is booked out that far. Google says only 52-72 in the US.
Thank you again for this thread Rita. I hope all is well with you.![]()
Mind over matter is very helpful during these things, as far as I have learned- our minds are very powerful- so no fretting!!!

But I'll limit tags to just those who did respond to my one post.
