Hi I am new to the forum. I just joined today. I feel desperate. I am struggling with a progressive illness that is affecting my digestive tract and nervous system. There is no name for it, and there is currently no cure or treatment. All my doctors are stumped. They have no answers or ways for me to manage it.
Recently in the past year, the progressive nature of my illness accelerated. I am currently dependent on total parenteral nutrition also known as TPN (IV nutrition via a central venous catheter) because my digestive system no longer works properly, and now it seems my venous system now no longer working properly either. If I lose venous access, then my hope for survival is very slim. I have already endured tube feedings in the past with no success before I was moved to TPN, with my weight plummeting to a low 46kg.
I have been practicing as much of the Christian faith and praying daily at home quite a lot over the past 2 years, and I am not currently able to go to church, because of my illness and also being on a machine over 14hrs a day.
Currently, I don't like to say it, but I feel like I am losing hope. Things are getting worse, and despite my perseverance to get the help and answers, I am not able to get it. So I turn to God, to ask for his help, and I continue to do so everyday in Jesus' name, but things are still progressing and still getting worse.
Recently in the past year, the progressive nature of my illness accelerated. I am currently dependent on total parenteral nutrition also known as TPN (IV nutrition via a central venous catheter) because my digestive system no longer works properly, and now it seems my venous system now no longer working properly either. If I lose venous access, then my hope for survival is very slim. I have already endured tube feedings in the past with no success before I was moved to TPN, with my weight plummeting to a low 46kg.
I have been practicing as much of the Christian faith and praying daily at home quite a lot over the past 2 years, and I am not currently able to go to church, because of my illness and also being on a machine over 14hrs a day.
Currently, I don't like to say it, but I feel like I am losing hope. Things are getting worse, and despite my perseverance to get the help and answers, I am not able to get it. So I turn to God, to ask for his help, and I continue to do so everyday in Jesus' name, but things are still progressing and still getting worse.